My Latest EEG at Vanderbilt Medical Center

This would be my 3rd EEG in two years. We are still trying to get my simple partials under control.

Having an EEG is not a lot of fun. You are tied down with about 20 electrodes attached to your head. They are small metal wires that glue to your scalp.

During the 3-5 day process, you are monitored 24/7 with video and audio for the doctors to record a seizure. The first time, I had no seizures. The second and third time, I had multiple.

Once you’re done with your EEG, it takes about 3-5 days to get the marker and glue outta your hair.

Seizures Suck

I just wanted to write a post and give everyone an update on my seizures. A lot of my friends, family and co-workers don’t really know the full story about what’s really going on. Most of them think I had one Grand Mal Seizure and now I’m ok. In reality, I’ve been struggling everyday since then.

Since September 2011, I have tried 7 different medications to try and control my seizures. My Tegretol controls my brain from have more Grand Mal seizures, but we still cannot get the partials under control. Nearly every night for the past month or more, I have been having nocturnal seizures. Recently, I haven’t been having as many during the daytime, until yesterday I had 3. It has a lot to do with being stressed out about many things.

Two weeks ago, I went to the Norton Brownsboro Epilepsy Monitoring Unit to try and capture these seizures in my sleep. This is the second time we have tried to capture a seizure; the first time being unsuccessful. We were successful this time and saw exactly where they were coming from. During the stay you have 34 electrodes hooked up to your brain and about 7 more to your chest and stomach. I also got an MRI which came back normal and we talked to my doctor about our future plans.

My doctor gave us three options. The first was to try more medication. Every time I try to take an add on medicine with my Tegretol, I start getting blurry and double vision. It keeps me from doing anything for about 4 hours. The second option is an implant called a VNS. It’s a small battery powered box much like a pacemaker that they impant in your upper left chest and attach it to the nerve in your neck. The other option is to have brain surgery and remove the portion of my brain that’s causing the seizures.

So if you can imagine, going through seizures and fighting them daily, it gets very frustrating. But you have to keep going and take it one day at a time.

As far as which route I’m going to take…I’m really not sure yet, but I need to decide something soon because it’s not getting any better.

Update 8/8/12: I have been taking Klonopin for awhile now as needed but we’re going to test it regularly at bedtime to see of it helps.

Dilantin and Keppra

After being on Keppra for a little over two weeks now and still having smaller seizures, it still hasn’t fully absorbed into my system yet, so my doctor ordered an IV of Dilantin yesterday to get it into my body immediately.

Let’s just say it was a painful and miserable experience I thought would last 30 minutes but we ended up staying in the hospital for 4.5 hours. My right hand was swollen, right shoulder was sore, my body was itching and tingling, I felt dizzy, confused, seeing spots and very blurry vision. It was much like the moment when you’re drunk and everything starts spinning before you throw up.

Today has been a much better day, not as dizzy, but still hard to keep my eyes focused on objects.

I’m now on 1500 MG of Keppra and 300 MG of Dilantin daily.


My First Seizure

Two weeks ago yesterday on Thursday, September 8, 2011 I had my first Grand Mal seizure.

I left my office around 11:45 AM to grab some lunch at Zaxby’s down the street. After ordering my usual Big Zax Snax Meal with Sweet Tea and extra Zax Sauce, I pulled around to the window to pay.

I had already received my drink, so I was just waiting on my food. I started getting this strange, light headed, dizzy feeling, called an Aura. My eyes were getting very sensitive to the light, my field of vision started to become very blurry and looked much like a kaleidoscope. It was sorta like a deja vu feeling, but miserable.

My left eye started twitching. I knew things were getting bad, so I took preventive measures and placed my truck in Park and told the Zaxby’s cashier to call 911. My left arm started shaking and my body tensed up. The last thing I remember was hearing my truck engine rev up from my legs tensing up and pressing the gas pedal. Thankfully, my truck was not in gear or things could have been gone from bad to worse.

I woke up nearly 10 minutes later on the back of an ambulance confused, upset, not knowing what was going on being asked multiple questions by the lady paramedic. I was told that I had a seizure and was being taken to the hospital for observation.

I was admitted straight to the ER, hooked up to all the machines and given some Ativan as an anticonvulsant. It wasn’t until 6pm that I finally saw the neurologist in the ER and they finally gave me a hospital room about 9:30 PM.

During my two day stay at the hospital I went through a CT scan, MRI and EEG. All returned normal results except the MRI, which showed a spot on my left temporal lobe. My neurologist said this is what’s causing the seizures and we will know more after my follow up appointment and MRI in the coming weeks.

This is a tough time and a challenge for my family and I. Thinking of what could have happened if my truck were not in park or if I had been driving at the time, I’m very lucky.

My drivers license has been revoked for 90+ days after my last seizure and I’m currently working from home in Eddyville. I do not have any immediate plans to be back in Bowling Green, but looking forward to coming back in the coming weeks.

Thank you to all my colleagues who sent cards and came to the hospital to see me. I sincerely appreciate the support and prayers from everyone.